Healthcare services today suffer from spiralling costs and a persistent variation of patient outcomes depending on quality of care in different hospitals and countries. The International Consortium for Health Outcomes Measurement (ICHOM), a non-profit organisation, believes that by focusing on patient outcomes and costs for delivering these outcomes, we can find a solution to this challenge. ICHOM was founded in 2012 by Professor Michael E. Porter of Harvard Business School, the developer of the value-based healthcare methodology. According to the concept, decision-makers, clinical management and physicians need to focus on the value of care for patients. Patient value is thereby defined as patient relevant medical outcome divided by cost. The remaining challenge to translate value-based healthcare into practice is the question of how to define, measure, and report best patient outcomes. To unlock the potential of value-based healthcare and to help patients, ICHOM therefore aims to define global standard sets of outcome measures. By the end of this year, ICHOM aims to have published Standard Sets covering more than 50 percent of the global disease burden in cooperation with healthcare institutions worldwide. In this process, ICHOM involves a team with diverse perspectives including physician leaders, patient advocacy members, and registry leaders to discuss – and agree upon – the outcomes that matter most to them.
An important part of this initiative is ICHOM’s involvement in the Patient-Reported Indicators Survey (PaRIS) of the Organisation for Economic Cooperation and Development (OECD). PaRIS shall develop a standard by which countries can define, measure, and compare patient outcome measures globally – which is key to promote value-based healthcare.